10/2/18

It’s almost 10pm on October 2. Just home from spending 4 days at my parent’s place. It was very hard to leave this time. Mom is quite weak and having trouble eating, likely from the reconstruction of her GI tract during her surgery in June.

She’s had 2 weeks off from chemo, but I think she’ll be ready to get a dose next Monday. She may need TPN, which is basically IV nutrition. She’d have to go to the hospital to get the right dosage, and then she could get the rest at home.

We made the decision for her to start sleeping in the downstairs den so she doesn’t have to do the stairs to her room. Her weakness plus arthritic knees equal a stair climbing nightmare. She’s moving tomorrow.

We also discussed getting a home health aide to help her which ultimately helps my dad. I believe it will improve both’s quality of life.

It is so hard to do this from Boston. I wish I could be there longer but I have to get back to work.

Last night, I tucked mom in and she said, “You are the best daughter in the world.” I told her she was the best mother. I doubt I’ll ever forget that moment. This came after a visit from our rabbi friend, who offered us her wisdom and sang a prayer for us. Mom & I cried. It was beautiful.

My surgery is in 20 days! I’m starting to go through my clothes, looking for smaller sizes, and preparing to donate the larger ones. It’s surreal but so exciting! I can’t wait to feel better and be able to move more.

As always, thank you to all of you who have reached out to me & my folks. It means a lot!

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