9/14/21 Update

Wow, thank you for all of the responses to yesterday’s post. I guess this is the best platform to get out the word to family & friends, so alas, here I am again. Let’s just say this family won’t go hungry as mom and dad’s friends are providing dinner for us the rest of the week – thank you! And a few people have texted about what they can do, send, etc. I talked about it with my folks and we agreed upon:

  1. Soups – namely for mom, but dad and I’ll probably eat them too! Mom likes tomato bisque, squash/pumpkin, easy to swallow.
  2. Snack foods – for dad, me, and our caregivers
  3. fruits/veggies – always welcome for dad, me, and our caregivers
  4. Food we can eat for dinner – again, for the caregivers and us

Again, please do not feel like you have to send us anything. This is only for those of you who want to. If you don’t, it’s totally ok!

It feels totally weird to tell people what to do for us. But I figured I might as well be honest and take some of the meal prep burden off of us. The other thing I’ll mention is that it’s hard on me when people say, “Let me know what I can do.” It puts the ownership on me to come up with something. As I always say, “Just do.” I’m sure whatever you choose to do will be appreciated. And again, it’s ok if you don’t “do.” Everyone has a lot going on right now with Covid, return to school, Jewish holidays, etc so it’s ok not to “do.” You can send a plant, flowers, a card, a singing telegram. We don’t have any preference. We do enjoy chocolate too. Just saying 😛

Dad is reading your cards and emails to mom. I’m sharing regards that you pass along. Again, mom is requesting very adamantly that we have no visitors and she’s not up for phone calls. This is her choice, and we respect it. I am not making an decisions for her. I ask her what she wants, and she tells me firmly, and I follow what she wants.

People often refer to me as “the rock.” It’s a blessing and a curse, because I’m a very sensitive and emotional being. So I asked Ted to come here this weekend so I have my “rock.” I imagine I’ll be here in NJ for a while.

I’m working 1/2 days this week, which helps, and I’m listening to classical music while lighting nice smelling candles, so that’s how I’m taking care of myself.

This has been a surreal 3.5 years. It really has.